What worked for me

What worked for me is a collection of articles and bite-sized tips from people with lived experience of LBD. 

Anyone within our community can share simple first-person accounts and pieces of advice of what worked for them for others to read and take what they want from if they feel it’s relevant to them. 

​Please remember that any information you find here is no substitute for professional medical advice and any medical decisions must be taken in discussion with appropriate health professionals.

Share your story

If you have any tips or advice you'd like to share, get in touch and tell us what has worked for you.

"Understand that it's exhausting, and realise you can keep going, but you need to be flexible."

What Worked For Me: Learning new ways to communicate

Hannah C shares how changing the way she had conversations with her mother improved the time they spent together.

"It’s helpful to see each tiny moment of joy or positivity as a little complete moment of care in itself. It helps lessen the heartache."

"Realise people will fall away, and not phone, or visit for your loved one like you had hoped. Acknowledge this, but try not to get too angry about it."

What Worked For Me: Trying to help others

Richard J shares how improving access to support for people in similar situations helped him feel more control.

"Remember there are people who can help; not everyone, but to keep options open."

What Worked For Me: Finding a Buddy

Esther B shares how her life was transformed when she met other peope who were local to her in similar situations.

"Big portions of food overwhelm, but small portions can work."

What Worked For Me: Rapid cycling

Esther B shares how rapid cycling helped to reduce - and even reverse - some of her husband's Parkinsonian symptoms.