Find what you needWe won't spend time, resources and money reinventing the wheel, so where support and information already exists, we'll simply signpost you to it.
Below you'll find some of the best places to find out more information and support services from UK-based organisations. We aim to ensure our signposting is as relevant and accurate as possible. If you think we've missed something, let us know. Please remember that any information you find on any of the linked websites is no substitute for professional medical advice and any medical decisions must be taken in discussion with appropriate health professionals. |
Another Presence'Another Presence' is a film recounting the unique experiences of people living with dementia with Lewy bodies (DLB).
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Useful links - Get support
Rare Dementia SupportThe Direct Support Team at Rare Dementia Support (RDS) are available to offer information, advice and support. Only RDS members can access their support. To join, email the RDS team or leave a voicemail message on 020 3325 0828 and they'll get back to you.
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Dementia Carers CountDementia Carers Count (DCC) run a free support line from Mon-Fri 9am to 5pm, where people can access support and advice from their team, including trained healthcare professionals.
Call the DCC helpline on: 0800 652 1102. |
Admiral NursesAdmiral Nurses are specialist dementia nurses supported and developed by Dementia UK. There are currently two Admiral nurses specialising in Lewy body dementia.
Call the Dementia Helpline on: 0800 888 6678 or email [email protected] |
Useful links - Find information
Lewy Body SocietyThe Lewy Body Society has a wealth of information on Lewy body disorder, its symptoms and treatment. There are a number of useful resources giving insight and advice on managing symptoms such as hallucinations and delusions.
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Dementia UKDementia UK is the specialist dementia nurse charity. Their Admiral Nurses provide life-changing care for families affected by all forms of dementia, helping families manage complex needs. They can also advise other healthcare professionals.
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Rare Dementia SupportRare Dementia Support (RDS) is a UK-based service provided by the UCL Dementia Research Centre and partners and funded by The National Brain Appeal. RDS also host online support meetings and seminars throughout the year.
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Parkinson's UKParkinson's UK has a wealth of information on the symptoms, management and treatment of Parkinson's, including thinking and memory changes.
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MindMind provides useful information on matters relating to the Mental Health Act 1983 and Section 117 Aftercare, which can be relevant for people affected by LBD.
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Alzheimer's SocietyAlzheimer's Society has a wealth of information on living with dementia, navigating different care options and the financial support you may be able to access.
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