 We are excited to announce a recent development in our journey to create an organisation dedicated to people affected by Lewy Body Dementia (LBD). As part of our preparation to register with the Charity Commission and our ongoing efforts to establish a stronger presence, we are officially changing our name from "Lewy Buddy Support Network UK" to "Lewy Buddies UK."
By Hannah C, whose mother has a diagnosis of LBD  After my mother’s first diagnosis, I realised I knew nothing. There was no escape from the fact that I was now responsible for my Mum, and I had to learn how I could help. I bought books. I joined websites. I scrolled through forums, but found them overwhelming, and lacking information specific to mum and our situation.
I’ve found that becoming that expert in Mum, what she needs, has been my approach. Learning a new way to communicate has been key, based on emotion and need, not fact and logic. It’s hard, and is another sort of loss, but ultimately rewarding.  Sunday 28th January this year is 'World Lewy Body Day' - the first of it's kind aimed at raising awareness of conditions caused by Lewy bodies, including Lewy body dementia.
 Since we started out, I wanted this organisation to be genuinely led by the people it aims to help. And until now, despite extremely limited time and resources, we’ve been able to do that in some small way. However, Esther and I feel that if we are to really start delivering on our aims, the time has come to make some notable changes. 
By Rich James, who started LBSN UK. Rich's mother was diagnosed with LBD in late 2020. 
By Esther Boyd, who began the Lewy Buddy UK peer support group, now part of LBSNUK. Esther cared for her husband who was diagnosed with LBD in 2011, until his death in 2019. 
By Esther Boyd, who began the Lewy Buddy UK peer support group, now part of LBSN UK. Esther cared for her husband who was diagnosed with LBD in 2011, until his death in 2019. 
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