Here for each otherReceiving a diagnosis of Lewy body disorder is likely to have a profound effect on both the person with the condition and the people around them.
We believe some of the most meaningful support can come from other people with similar experience, so peer support is central to our approach. It means being able to lean on others when you need to. But it also means sharing your experiences to help and support others in similar situations. We're here for each other. |
Become a BuddyConnect with other people living in similar situations - by phone, online or in person - by becoming a member of our Buddy Directory.
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How we can help
Calendar of key datesFind out about any upcoming meetings and events that could be relevant to you.
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Facebook communityOur Facebook group is an informal place to connect with a community of people across the UK.
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What worked for meExplore articles where members of our community share their account of what worked for them.
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"Having such a great sense of virtual community with shared experiences... I want to thank you all... I felt part of something with you all." |
Useful links
Rare Dementia SupportThe Direct Support Team at Rare Dementia Support (RDS) are available to offer information, advice and support. Only RDS members can access their support. To join, email the RDS team or leave a voicemail message on 020 3325 0828 and they'll get back to you.
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Dementia Carers CountDementia Carers Count (DCC) run a free support line from Mon-Fri 9am to 5pm, where people can access support and advice from their team, including trained healthcare professionals.
Call the DCC helpline on: 0800 652 1102. |
Admiral NursesAdmiral Nurses are specialist dementia nurses supported and developed by Dementia UK. There are currently two Admiral nurses specialising in Lewy body dementia.
Call the Dementia Helpline on: 0800 888 6678 or email [email protected] |
