Online support meeting notes: Archive
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April 2026Online support meeting notesKey topics: Emergency preparedness bags, IQoro, pilates rings, Diamond Lewy Toolkits, dementia and driving, Admiral Nurses, handwriting exercises.
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March 2026Online support meeting notesKey topics: Tremor management, Rivastigmine effectiveness, incontinence management, respite and carer support, varied symptom presentations, maintaining social connections, carer wellbeing and exhaustion.
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February 2026Online support meeting notesKey topics: Top Hat Phase 2 drug trial, CHC funding, Parkinson's symptoms, refusal of medication, hearing aid challenges
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January 2026Online support meeting notesKey topics: Balancing medication for cognitive & physical symptoms, balance and mobility issues, self-advocacy, end-of-life planning, quality of life, finding moments of joy, support networks
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December 2025Online support meeting notesKey topics: Palliative care, drug trials, monitoring solutions (Ring doorbells, baby monitors), activities for people with a diagnosis (bird toys, art therapy, and music)
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November 2025Online support meeting notesKey topics: LBD stages, high anxiety (medication and sundowning), confusion caused by mirrors and photographs, masking, hospital visits, care homes, TV adverts about dementia, Telegraph article about LBD, Lewy body disorder
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October 2025Online support meeting notesKey topics: Increasing GP's knowledge about LBD, Talking therapy, Life Review, Uribag, Symptoms (excess saliva, decreasing platelets, choking, convulsions, Myoclonic epilepsy)
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