Who we are and what we do

We are Lewy Buddies UK, a community-led organisation supporting people affected by Lewy body dementia, also known as lewy body disorder, which includes:
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  • Lewy body dementia (LBD)
  • Dementia with Lewy bodies (DLB)
  • ​Lewy body dementia with Parkinson's
  • Parkinson's disease dementia (PDD)

See umbrella diagram below for a visual explainer of the different conditions we provide support for.

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Like and Follow our Facebook page for news and updates on what we're doing to improve and extend the support  we offer.

Our volunteer team

Richard James
​Co-founder

​Rich has worked in a range of senior fundraising and communications roles within the charity sector for nearly a decade. He set the Facebook support group (formerly Lewy Body Support Network UK) to improve access to information and support based on his personal experience after his mum received a diagnosis of LBD in late 2020. 

Esther Boyd
Co-founder

Esther is a retired architect and community activist living in Birmingham. She cared for her husband who was diagnosed with LBD in 2011. It took them five years to meet another couple living with the disorder. ​
​She set up peer support group Lewy Buddies UK after his death in 2019.

We joined forces to set up

Our vision

A future where everyone affected by Lewy body disorder is informed and welcomed into a UK-wide community of individuals helping and supporting one another.

Our mission

To improve access to the most relevant, meaningful information and support for anyone affected by Lewy body dementia.

Our values

Led by lived experience
​The shape of our activities will always be guided by genuine, lived experience of people affected by Lewy Body dementia. We're always listening for ways we can improve, adapt or extend our support.
In this together
We believe we all have a role to play. We're in this together and that includes you. Your insight and personal experience could be a lifeline for someone else going through a similar situation. 
Honest at all times
​We are honest and open about the realities of living with, or alongside Lewy body dementia. We'll also be open and up front about other services available that could be of help.

THE BUDDY DIRECTORY

Be part of our community

Join our Buddy Network today

Never miss a thing

Calendar of key dates

Find out about any upcoming meetings and events that could be relevant to you.

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Stay up to date with all the news and developments, including support opportunities.

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Follow our Facebook page to stay in the loop and help spread the word about our services.